The CMTA is a 501(C)(3)nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT. A voluntary Board of Directors governs the CMTA. The Medical Advisory Board of the CMTA consists of over 50 clinical and research medical professionals. This international group of men and women are noted CMT experts in neurology, genetics, orthopedic surgery, physiatry, physical therapy and podiatry.
The CMTA currently has more than 15,000 patients and families, supportive friends, and medical professionals in its database.
Our mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth. Our vision is a world without CMT!
Gifts to the CMTA go either to client services (operations) or to research. Gifts to client services make the day-to-day function of the organization possible, as well as funding such patient services as our newsletter, our 800 question-and-answer line, our website, and our patient-family conferences on CMT. Simply put, there would be no one to answer the phone and offer help to CMT patients were it not for operations funding. The Charcot-Marie-Tooth Association is proud that the percent of its total support and revenue spent on administration and fundraising expenses has always fallen well below the 25 percent allowed by the government. |
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