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2/25/2008: Upcoming Events: March-May, 2008
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Five-year-old Ethan Spade and his Circle of Friends will hold a one-mile "Walk for the Cure" on March 15, 2008, at Mount Aloysius College in Cresson, PA, to raise money for CMT research.
Ethan, who has CMT, currently wears braces on both legs in order to avoid problems with tightened muscles during the day. He also goes for physical therapy and has a workout routine that he does at home every day. There will be a live DJ, prizes, and more!
On-site registration for the walk begins at 10:00 a.m., or you can call Tracy Spade at (814)421-8661 to pre-register. If you’d like to make a donation in support of Ethan and the other walkers, please visit Ethan’s webpage at www.charcot-marie-tooth.org/Ethan.
Ethan, and everyone affected by CMT, thanks you for your support!
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The Charcot-Marie-Tooth Association will hold a patient-family conference on Charcot-Marie-Tooth Disorders on Saturday, April 5, 2008, from 9:00 a.m. to 3:00 p.m. at the BRB Auditorium on the University of Pennsylvania Medical Center Campus, 421 Curie Blvd., Philadelphia , PA.
Click here for program details and information on how to register.
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A Midwest Regional Meeting and Patient Fair will be held at Wayne State University on Saturday, April 12, 2008. There will be plenary talks as well as workshops, and lunch will be provided.
There will also be laboratory tour and a reception in the atrium of the Elliman Building on Friday, April 11, 2008, from 6:00 to 8:00 p.m.
Click here for program details and information on how to register.
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CMTA Executive Director Charles Hagins and Chicago Regional Membership Director Alan Pappalardo will staff a booth to provide attending neurologists with information on CMT and the work of the CMTA.
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In conjuction with the John P. Murtha Neuroscience and Pain Institute, the CMTA will hold a Patient-Family Conference at the Holiday Inn on Market Street in Johnstown, PA, on Thursday, May 29, 2008.
Program details and information on how to register will be provided as soon as they become available.
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